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Prader-Willi Syndrome
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The Nicholas Tersigni Memorial Foundation, Inc.

The Nicholas Tersigni Memorial Foundation, Inc.The Nicholas Tersigni Memorial Foundation, Inc.The Nicholas Tersigni Memorial Foundation, Inc.
Hi-Ya!
About
Prader-Willi Syndrome
Past Events
Upcoming Events
More
  • Hi-Ya!
  • About
  • Prader-Willi Syndrome
  • Past Events
  • Upcoming Events

The Nicholas Tersigni Memorial Foundation, Inc.

The Nicholas Tersigni Memorial Foundation, Inc.The Nicholas Tersigni Memorial Foundation, Inc.The Nicholas Tersigni Memorial Foundation, Inc.
  • Hi-Ya!
  • About
  • Prader-Willi Syndrome
  • Past Events
  • Upcoming Events

It’s almost here!

Join Us! at "Craving a Cure" Musical Bingo! 


 Saturday, November 7, 2026 from 5:30 p.m. - 10 p.m. at St. Nicholas Byzantine Catholic Church 

13 Pembroke Road, Danbury, CT 06811


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It’s a wrap!

Thank you to all that attended the first annual Gala. If you are interested in donating or attending future events please see the links below.

We heartily invite you to attend a very fun evening, "Craving a Cure" MUSICAL BINGO, which will be held on Saturday, November 7, 2026 from 5:30p.m. until 10 p.m. at 

St. Nicholas Byzantine Catholic Church, 13 Pembroke Rd in Danbury, CT. 


We will celebrate both the life and memory of little Nicholas Tersigni who was born with 

Prader Willi Syndrome. We will raise funds to support research on this syndrome in hopes of one day finding a cure. There will be amazing music, great fun, raffles, and a silent auction.


Proceeds will go to the Prader Willi Syndrome Association.


If you are unable to join us, please consider making a monetary donation, becoming a sponsor or donating to our Silent Auction. Together, with your assistance, we will be able to make a difference in the lives of Prader Willi children and their families.


Thank you in advance for your support.


With heartfelt gratitude and warmest regards,


Lara Tersigni - Nicholas’ Mom 

President

and the 'Friends of Nicholas'  Committee at

The Nicholas Tersigni Memorial Foundation, Inc. 

  The Nicholas Tersigni Memorial Foundation, Inc. is a 501(c)(3), Non-Profit organization. All donations are tax deductible. Monetary donations may be made through our website or checks may be made payable to: Nicholas Tersigni Foundation, and mailed to 175 Ball Pond Road, New Fairfield, CT 06812. 


For information on how to donate items to the silent auction, please call 203-746-1074.

Contact Us

Hi Ya!

Tell us more about how you'd like to get involved.

THE NICHOLAS TERSIGNI MEMORIAL FOUNDATION, INC

175 Ball Pond Road, New Fairfield, CT 06812

Events and Volunteering

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PLEASE SUPPORT US and help Make a Difference

Nicholas, a handsome boy who brought joy to everyone around him.  He spoke only a few words, yet, he truly had no need for words at all. He spoke his own language. His bright eyes spoke volumes. With his unconditional love, he would take you by the hand and show you better than any words could ever say. Nicholas’ love overflowed and one would never guess he suffered from Prader-Willi Syndrome (PWS). 

His trademark greeting was a love-filled, “Hi-Ya!”

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the NICHOLAS TERSIGNI MEMORIAL FOUNDATION, INC

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